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Exhibit 69
Artist
New South Wales, Australia
Ashleigh is an SCN8A warrior from Sydney. She lives in the Sutherland Shire with her parents and older sister. Ashleigh is in her last year of school where she is very proud to be the School Captain.
Ashleigh was diagnosed with SCN8A when she was nine years old. Despite suffering debilitating seizures from four weeks of age, the cause was not known for many years. It was only after donating her DNA to medical research and genetic testing that we were eventually given the diagnosis.
Ashleigh is an easy-going, yet strong, young woman. Her smile brightens the lives of all those who are lucky to have met her.
Ashleigh Kelly
Title
Evolving Colour
This artwork was a collaboration with her mum, Jo-Anne.
Acrylic pouring on canvas.
Ashleigh chose the colours of her artwork using eye gaze technology. Yellow, red, blue and white paint was used. She chose which colour was to be added to the cup first and indicated using eye blinking when there was enough of that colour in the cup. She then chose subsequent colours and amounts in the same way.
Using a chopstick, Ashleigh was assisted to lightly mix the colours in the cup. Mum poured the paint onto the canvas until it was covered. Ashleigh then used the chopstick to make gentle lines in the paint.
She even left a few small fingerprints to officially make her mark.
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